Resources
Top Sites
With so much information on the internet, knowing where to start is the main issue. These are my top recommendations. Other websites are listed lower down the page.
There is also sister site - AF Association
The Arrhthymia Alliance is a charity that was launched in 2004. It aims to improve the awareness about, diagnosis, and treatment of cardiac arrhythmias and to improve the quality of life of people who suffer from them. The website has a large amount of information - click 'Patients' on the top menu. There is a useful section on Travel Insurance too.
The 'nation's heart charity' for over 50 years. A huge resource for patients with lots of information about heart diseases and treatments. As well as viewing information in your browser, there are booklets that can be downloaded or posted to you - particularly useful if you are getting information for a relative who isn't online.
Yes ... a blog! Written by John Mandrola who is a practising Cardiac Electrophsiologist (and happens to have had episodes of atrial fibrillation himself). There is a section "For Patients ... Educational Posts" and lots more. For some strong but thoughtful opinions go here!
Other Sites
Reflex syncope (also known as vasovagal syncope), and POTS.
www.stars.org.uk has good video clips on treatment options.
Patient monitors.
Arrhythmia monitoring is imperfect because arrhythmias often don't occur when the monitor is being worn. Various alternatives are becoming available. Search for Kardia Mobile, Prince 180B Easy Handheld Monitor, Zio Patch. Some of the monitors are substantially cheaper second hand.
Anticoagulation
This has changed recently as NOAC drugs have become available. See the BHF page on NOACs for more information. European Society of Cardiology patient information cards can be downloaded from here (below the link to the full guide document).
Advanced Information
The European Society of Cardiology has a large website. There is a section for patients. Clinical guidelines are also available but please be aware that these are lengthy and primarily intended for practising cardiologists.
Social
The rise of social media ... I am on LinkedIn, ResearchGate, IWantGreatCare and Twitter!